News & Events
Gould Syndrome Awareness Day 2020
April 12th 2020, will mark our first awareness day, the families and caregivers affected with Gould Syndrome selected this day because of the "4" representing the Collagen IV location and "1,2" for the Alpha chain 1 and 2 locations. The Awareness logo was designed by family friends of a loved one affected with Gould Syndrome in South Africa.
Boy getting sworn in as honorary firefighter
Boy getting hospital visit post op by Darth Vader
Girl with Gould Syndrome finding Epileptic answers with Boston Children’s Neurosurgery team
Girl Born in Alberta Hospital with Gould Syndrome
Teacher and Father, Jeff Detlefsen created Awareness Video for April 12th, Gould Syndrome Awareness Day