Archived Events

Rare Disease Day 2020

Date: February 29th, 2020

1. With the Covid-19 Pandemic affecting the world, 101 countries had friends and families show their support by #showingtheirstripes and changing banners on their facebook pages. Board Member Sara Reddick and LulaRoe Team Gheen raised over $1050 in a clothing Boutique Fundraiser online!

2. The FDA Celebrated first time ever Rare Disease Day in 2020 and featured on their promotional cover a child with Gould Syndrome and her caregiver.

NORD 2019 Summit Rare Disease and Orphan Products Breakthrough

Gould Syndrome Foundation had a full scholarship to attend the conference, the largest attendance record in history. We were also accepted into the poster demonstration and had a Gould Syndrome Poster presented by Dr. Douglas Gould at the event.

Rare Disease Day 2019

Gould Syndrome Foundation (Originally named COL4A1 Foundation) had it's first ever Fundraiser at Kendra Scott in Woodmere Ohio. We raised over $400 for the start of the Foundation

Gould Syndrome Foundation