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Our grassroots 501 (c) 3 non-profit started in 2018 as family, looking to help connect our small community of COL4A1/A2 members with the medical community for therapeutic/medical interventions and medical and scientific awareness.

We have a volunteer based Board of Directors, Medical and Legal Advisory Board and unpaid Staff. One hundred percent of your donation will go to funding our mission to provide advocacy and awareness to the medical and affected community alike. Support our mission by donating today.

Gould Syndrome Foundation