Gould Syndrome across the world

This map shows the locations across the globe where the scientific and medical community is leading crucial research and funding efforts for COL4A1/2.

World map with five numbered locations marked: 1 in western North America, 2 in central North America, 3 in eastern North America, 4 in western Europe, 5 in southern Europe.

  1. Gould lab, doug gould • San francisco, california

  2. Gould Syndrome Center • San Francisco, California

  3. Dr Musolino at Mass General • Boston, massachusetts

  4. eu col4a1 Organization • Rome, italy

  5. Thibault Coste • Paris, France

  6. University of Sheffield • United Kingdom

patient to patient recommendations

The Gould Syndrome Foundation is creating a patient-to-patient recommended clinician map to help families in our community find quality care regardless of where they are located. If you have experience with an excellent clinician who has directly treated you or your loved one with COL4A1/A2, we want to hear about them. Please share your top doctors and specialists through the link below. (Please note: These are community recommendations, not Foundation-approved referrals.) Thank you for helping our community!

Patient to patient recommendations