events
If you have a fundraiser or event you would like highlighted on the website, please submit your event information here. If you are hosting a fundraiser for The Gould Syndrome Foundation and would like branding material for merchandise or social media or a personalized fundraising page including QR code for donations, please email us here.
Dr. Vassar Webinar re: Natural History Study
Dr. Vassar will be hosting a webinar on June 24th with our community! The purpose of this webinar is to discuss the ins and out of her natural history study, there will be space for Q&A at the end of the webinar.
Meeting Link: https://ucsf.zoom.us/j/92138432003?pwd=wPvjzHaQELW0W1coqbaC6rTKCqhJ21.1
Time: Tuesday June 24th, 2025
09:00 AM Pacific Time (US/Canada)
Meeting ID: 921 3843 2003
Password: 089995
June 2025 Community Meeting
You're Invited! The Gould Syndrome Foundation's June 2025 Community Meeting will be on Wednesday, June 4 from 4–5pm PT.
On the agenda:
Board introductions
Walk through of our Scientific & Medical Advisory Board
Learn about an exciting upcoming webinar with Dr. Vassar
Wednesday, June 4 · 4:00 – 5:00pm Pacific Time
•
The meeting has concluded. Link to meeting or watch the video directly below: https://www.canva.com/design/DAGp5ytjXlM/9oxMMSEnjLNQyFp6CD725w/watch?utm_content=DAGp5ytjXlM&utm_campaign=share_your_design&utm_medium=link2&utm_source=shareyourdesignpanel
Please note that the Q&A was removed for privacy and brevity, and that the recording starts a couple of minutes into the meeting due to a technical difficulty. Thank you!
Gould Syndrome Awareness Day 2025
April 12th marks Gould Syndrome Awareness Day worldwide. We’re honored to have members like you in our community. There are many ways to show your support and get involved:
Invite friends and family to subscribe to the GSF newsletter
Make a donation
Host a fundraiser to contribute to research and treatments
Check if your workplace provides company matching of donations
Show off your GSF swag in person and/or on socials on April 12th (or get some if you haven’t already from our new shop!)
Visit our Contact Us page to learn about ways to volunteer with the GSF
Use our custom Canva Template to share on social platforms
Engage the #GouldSyndromeAwarenessDay2025 on social platforms
Rare Disease Day
Stay tuned for more information on how The Gould Syndrome Foundation is celebrating Rare Disease Day in 2025. Find out more about recognizing Rare Disease Day and how you can contribute to spread awareness here.
2nd COL4A1/2 International Conference
View more information about the International Conference here.
UCSF Opens World’s First Center of Excellence for Gould Syndrome
The UCSF Gould Syndrome Center, a service of the Pediatric Neurology Program, is the world's first center dedicated to supporting patients with Gould syndrome.