Scientific & medical advisory board

Our esteemed board plays a pivotal role in shaping the direction of our research, offering invaluable guidance and thoughtful insight as we work to advance our understanding of this disease. Their expertise, leadership, and unwavering commitment ensure that our efforts remain focused, strategic, and impactful. We deeply appreciate the time, dedication, and hard work they invest in this mission, as their contributions are instrumental in driving meaningful progress. It is through their vision and support that we are able to pursue innovative solutions, improve patient outcomes, and ultimately bring hope to those affected by Gould Syndrome.

Board members are listed in alphabetical order of their surname.

  • Tom Van Agtmaeil, PhD

    Tom Van Agtmaeil, PhD

    Professor of Matrix Biology and Disease (Cardiovascular and Metabolic Health)

    University of Glasgow, Scotland

    Website

  • Kenda Alhadid

    Kenda Alhadid, MD, MSC, FRCPC

    Vascular and Pediatric Neurologist with a special interest in stroke in the young, stroke in women, and genetic vasculopathies

    Massachusetts General Hospital, Boston

    Website

  • Brenda L. Bohnsack, MD, PhD

    Brenda L. Bohnsack, MD, PhD

    Ophthalmology

    Ann & Robert H. Lurie Children's Hospital of Chicago

    Website

  • Man with a beard and short hair wearing a black sweater, smiling in an office setting with a computer screen in the background.

    Thibault Coste, PhD

    Molecular Geneticist, Neurovascular Molecular Genetics Department

    Saint-Louis Hospital, Paris

    Website

  • Douglas Gould, PhD

    Douglas Gould, PhD

    Professor, Genetics, Ophthalmology, Leading Researcher in COL4A1 & COL4A2

    San Francisco, California

    Website

  • Arshad Majid, MD

    Arshad Majid, MD

    Vascular and Interventional Neurologist

    Professor of Cerebrovascular Neurology 

    University of Sheffield, England

    Website

  • Hugh Markus, PhD

    Hugh Markus, PhD

    Professor of Stroke Medicine 

    University of Cambridge, England

    Website

  • Patricia L. Musolino, MD, PhD

    Patricia L. Musolino, MD, PhD

    Neurology, Pediatric Neurology

    Massachusetts General Hospital, Boston 

    Website

  • John Snow, MD, PhD

    John Snow, MD, PhD

    Neurology Resident 

    Massachusetts General Hospital, Boston

  • Rachel Vassar, MD

    Rachel Vassar, MD

    Pediatric Vascular Neurologist

    UCSF Benioff Children’s Hospital

    Website