BOSTON 2026

3rd COL4A1/A2 International Conference

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Thank You for Being Part of Something Extraordinary

What happened in Boston was more than a conference. It was two days of families finally finding each other, researchers sharing work that is moving the needle, and a community proving that rare does not mean alone. We are so grateful for everyone who showed up, in person and from afar.

DOWNLOADS & HANDOUTS

  • Rewatch the Sessions

    Missed a session or want to revisit a moment that stayed with you? The full recordings from both days are available below. Share them with your care team, your family, or anyone who needs to see what this community is building.

    View All Recordings

  • Relive the Weekend

    Two days of connection, laughter, tears, and hope. Browse the full gallery below and tag us if you share.

    View the Gallery

  • Agenda

    Every session, every speaker, every moment from both days. Download the full agenda from the 3rd International COL4A1/A2 Conference for your records or to share with your care team.

    Download Virtual Agenda

  • SHARE YOUR FEEDBACK

    Your experience matters to us. Help us make the next conference even better by taking a few minutes to share your thoughts.

    Click Here

  • BEHAVIORAL CHALLENGES SESSION

    One of the most talked-about sessions of the weekend. Dr. Ricciardi's presentation on childhood behavioral challenges offers practical, research-backed strategies for families navigating neurobehavioral disorders at home.

    Download the handout to revisit the principles, case examples, and tools he shared with our community in Boston.

    Get the Handout

With Gratitude

Our Speakers and Researchers:
To every clinician, researcher, and specialist who traveled from across the country and around the world to share their work: thank you. The science you are doing on behalf of this community gives our families real, tangible hope.

Our Volunteers and Board:
None of this happens without the people behind the scenes. Our board and volunteers gave their time, energy, and heart to make this weekend what it was. We are endlessly grateful.

Our Families, Near and Far:
You are the reason we do this. Every family who made the journey to Boston, and every one who watched from home, reminded us exactly why this foundation exists. Thank you for trusting us with your weekend.

Virtual Attendees:
Distance was no barrier this year. To everyone who joined us remotely, your presence was felt throughout the weekend. We are so glad you were with us.

help Us Keep This Work Going

The research is advancing. The community is growing. And none of it happens without your support. If this weekend moved you, consider making a gift to the Gould Syndrome Foundation. Every dollar funds the research, resources, and gatherings that bring this community together.

Check if your workplace provides donation matching to maximize your contribution.