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August Virtual Community Meeting

SAVE THE DATE for Wednesday, August 20th @ 12p PT to join our (virtual) Community Meeting! We can't spill all the details just yet, but trust us when we say we have HUGE news for our families, our researchers, and our Foundation. Stay tuned - you won't want to miss this!

Time: Aug 20, 2025 12:00 PM Pacific Time (US and Canada)

Join Zoom Meeting: https://zoom.us/j/98426027760

Meeting ID: 984 2602 7760

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June 24

Dr. Vassar Webinar re: Natural History Study