Rare Disease Day is a global day to raise awareness for the more than 300 million people living with a rare disease, including our Gould Syndrome community. Share your story, wear your colors, or make a gift to help move COL4A1 and COL4A2 research forward. Want to host a fundraiser? Email us at info@gouldsyndromefoundation.org and we’ll help you get set up.

More details coming soon.